This site is still under construction, but I wanted to get it up so that you get an idea of my plans. The links below do not work yet, but the site will be up and running at full speed very soon hopefully. If you are interested in donating to my efforts, my donation page is on active.com, and can be found by clicking here. Thank you for your help and your interest.
Also, thank you for your patience!!! Owen, who is doing the web design, has been working hard everyday on this site to get it completed. He is learning how as he goes. Thank you Owen for all your work and thank you everyone for your continued patience as Owen and I put this site together little by little.
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WELCOME to runformyrugrat.com,
Written on this site you’ll find a variety of information about neurofibromatosis (NF), my rugrat, and ways to get involved in the search for a cure.
The 2 main goals of runformyrugrat.com are: to raise awareness about NF and to raise money for the Children’s Tumor Foundation (CTF). To learn more about NF and CTF click on the about NF tab.
I first learned about NF when I met my fiancé Owen. His niece/goddaughter, Maria, has NF—more specifically NF1. The tab above titled Maria’s Story is where you can learn more about my rugrat Maria, her family, and their experience with NF.
The NF Endurance Team, which is sponsored by CTF, is how I first chose to get involved in the fight to find a cure for NF. There are several different ways to help out with the cause. Under the get involved tab you’ll find a list of ideas to get you started.
Thank you so much for stopping in and checking out runformyrugrat.com. I hope you find this site informative and easy to use. Your feedback would be greatly appreciated, so please drop me a line on the message board.
Best Wishes,
Christine M Cook